Inform. Inspire. Action

Living with Albinism: the burden of discrimination, neglect and severe health risks

Mohamed Osman Kamara, Executive Director of SLAPWA, says deep- rooted myths in society make some parents don’t want to publicly associate with their children living with albinism, with some going to the extreme of abandoning their children. Photo Credit: Kemo Cham, Engage Salone.

It’s screening day at the headquarters of the Sierra Leone Association of Persons with Albinism (SLAPWA) in Freetown. Among the crowd, a frolicky young boy, Jeremiah, runs around as people are attended to.  At eight, Jeremiah is unaware of the burden he carries due to his skin condition – albinism. “He is so playful that […]